The Rusakovich family is raising funds for vital treatment for their son Ruslan,born in August 2020.
Ruslan has a rare genetic disease - cystic fibrosis of mixed form, severe stage. This is a systemic hereditary disease which affects all organs that secrete mucus: the bronchopulmonary system, pancreas, liver, sweat glands, salivary glands, intestinal glands, sex glands.
Ruslan was born on time. The first month of his life the weight wasn’t gained properly, vomiting happened after every feeding. Being 1 month old, due to the absence of blood clotting factors, he received several transfusions. At the age of 4 months after long hospitalizations, a diagnosis of cystic fibrosis of mixed form, severe stage was established.
In Europe and the USA people with this diagnosis, in condition of receiving the necessary treatment, live till old age. Unfortunately, in our country, due to the lack of original drugs and adequate therapy, children die very early. Treatment with such a diagnosis is very expensive and there are no many medicines in the country. In terms of general development, children diagnosed with cystic fibrosis are not different from others: they are just as cheerful, radiant, active and strong in spirit.
Ruslan needs expensive original drugs (pulmazim, ursofalk, etc.), breathing simulators, and a drainage vibration vest. Analogues and substitutes (generics) that are currently offered by prescription doctors are not effective in this diagnosis. For the purchase of effective drugs abroad to provide daily therapy, you need 700-1000 USD per month, and the cost of a drainage vibrating vest is 15,000 USD.
Rusakovich Natalia, mother: “Ruslan is a very cheerful child. And we are not ready to give up. We want Ruslan to breathe, run, enjoy life. If there is even one chance in a thousand, then it must be used and one must fight for the son. The treatment of this disease is very expensive and we cannot cope with it ourselves. Without adequate therapy, every breath for Ruslan can be his last. Our family asks for help from caring people so that our little Ruslan can breathe easier and he can live. "
Charitable accounts were opened at JSC "ASB Belarusbank", branch number 527/447 - Minsk, Slobodskaya street, 15:
- Belarusian rubles - charity account agreement
BY06 AKVV 3134 0000 0053 5007 0000, the account is valid for an unlimited period;
- US dollars - charity account agreement
BY71 AKVV 3134 1000 0028 8007 0000, the account is valid for an unlimited period;
- Russian rubles - charity account agreement
BY11 AKBB 3134 3000 0022 7007 0000, the account is valid for an unlimited period;
- euro - charity account agreement
BY08 AKBB 3134 2000 0025 0007 0000, the account is valid for an unlimited period;
Purpose of payment: collection of funds for treatment and purchase of medicines for Rusakovich Ruslan Sergeevich.
Belarusbank card: 4255 1901 2251 5607 to 10/23, Sergei Nikolaevich Rusakovich
+375 29 240-11-68 –MTS charitable number (top up balance)
Yandex money (Yu Money) 4100116307170008
Contacts: +37529 758-78-18 - Natalia (Ruslan's mother)